B
orn with Poland Syndrome Kim Daybell started playing Table Tennis at home when he was nine years old and was drawn in by the speed and excitement of the sport. He has now been competing for eight years and trains at the English Institute of Sport in Sheffield. In addition to his sporting aspirations, Kim’s other main ambition is to complete his medical degree.
www.polandsyndromedocumentary.com
Web Site www.wvsglobal.com WVS Global Office 508.392.9524
WVS Global is thrilled to include Matt Gone in our Poland Syndrome Documentary. Spokesperson for Poland Syndrome for the last 20+ years in the media, on medical shows and Matt has appeared in over 200 magazines and newspapers. He is also a spokesperson for the National Kidney Foundation.www.polandsyndromedocumentary.com
Web Site www.wvsglobal.com WVS Global Office 508.392.9524
WVS Global was recently on Boston's waterfront filming the swordfish and tuna boat Iron Maiden. Interviewed were the Captain, crew and filming was completed of the thirty thousand pound catch as it was removed from the ice covered depths of the ship to the transport truck and into the processing plant.
Born with Poland Syndrome author, Cynthia L. Sharp is now a contributing producer.Cynthia lived much of her younger years feeling disconnected to the beautiful body with which she was born. Through years of research and her own personal transformation, she now understands the true meaning of body union. Today, she helps others worldwide through Body Bonding coaching; retreats and workshops connect back to life and the joy that our bodies were meant to know. She is a coach, author, inspiring speaker, laughter yoga leader and host of her own Body Bonding radio show.
We welcome Cynthia's contributions to the Poland Syndrome Documentary.
www.polandsyndromedocumentary.com
Web Site www.wvsglobal.com WVS Global Office 508.392.9524
Doctor Dror Paley, founder and director of the Paley Institute at St. Mary’s Medical Center to participate in the Poland Syndrome documentary.Dr. Paley is internationally recognized as the most experienced limb lengthening surgeon in the world.
www.polandsyndromedocumentary.com
Web Site www.wvsglobal.com WVS Global Office 508.392.9524
I think it would be cool for Zoe to see when she is older, she is left hand affected. Jennifer Tyngsboro, Ma
My son is 7 years old and is missing his left major pectoral muscle and is missing phlanges in three fingers on left hand and index and thumb are webbed a little bit...Bryan is a very active boy, he plays basketball, baseball and did play soccer. If interested in talking with us, please contact me. Rockland, MA
Interviews with adults and children affected are now arranged around the US, in England and Ireland.
Come and interview Gregg and I and meet The Blakester!! He's the 2 yr little man with the plan. Louisville Ky
My 9 yr old daughter Hope was born with Poland Syndrome, we did not know she had it until delivery. She was born with a heart murmur, a claw like hand with no recognizable fingers. Would love to help. Maryland
Hi, my name is Kris, I am a 37 year old, single father of two teenagers, with P.S. on my left side. I think it’s wonderful that the world might be able to understand our condition a little bit better now. Myrtle Beach, S.C.
My daughter is 10 and is left side affected. She has a mild case but has no pec muscle, one impacted finger, and her whole left upper body is smaller in comparison to her right. I spoke with her and we are interested in helping if you still need families/kids to speak with. We live in Ohio.
Our son is 2 1/2 and was finally diagnosed around 7 months with Polands. His ribs didnt grow the way they were supposed to and I also can see his heart beating and feel it beat because the only thing there is skin. I worry about his future as a little boy. He can not play in contact sports and I feel bad. Please whatever we may do to help, Danielle England
I am now 62 and I was born with PS. It affected my left hand, my left chest, ribs & part of my back. I have had corrective surgery to my hand & chest but little could be done. England
I was born in 1966 in Germany and I would love to help. At birth my right pec was missing, along with a considerable amount of breast tissue. PS had never really prevented me from doing the things I wanted to do in my life. I believe PS affects people in so far as they allow it to affect them. Ursula Ireland
www.polandsyndromedocumentary.com
Web Site www.wvsglobal.com WVS Global Office 508.392.9524
Perry Barber is one of of the few female umpires to work with Major League Baseball teams and officiating games for the New York Mets for the past 27 years. WVS Global is excited to produce the story of her career.